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Thalassemia: The Long Road From The Bedside Through The Laboratory To The Community

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Weatherall, D. Thalassemia: the long road from the bedside through the laboratory to the community. Nat Med 16, 1112–1115 (2010). Https://doi.Org/10.1038/nm1010-1112

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Free Thalassemia Treatment For Poor

Patna: State Health Society, Bihar, and Christian Medical College (CMC), Vellore, signed a memorandum of understanding (MoU) here on Friday for providing free treatment of thalassemia to financially backward children below 12 years of age.Each such thalassemia-affected child will get a grant of up to Rs 15 lakh from Mukhyamantri Chikitsa Sahayata Kosh under Mukhyamantri Bal Thalassemia Yojana. Notably, there are 2,716 thalassemia-registered patients in Bihar.Health minister Mangal Pandey said that the scheme was a boon to the poor children."Thalassemia is a serious genetic disease, which prohibits formation of healthy and effective red blood cells in body due to which the child needs blood transfusion at regular intervals. Bone marrow transplant is the only permanent solution to the malady, and is very costly. Keeping this in mind, the state govt's scheme in the direction was approved on August 6," said Pandey. Pandey on Friday accompanied 52 people, including 13 patient children, along with their parents, and 13 donors, to the Vellore-based hospital in Tamil Nadu on a flight. Bihar govt has arranged for free lodging, travel and food.Pratyaya Amrit, additional chief secretary of health department, said that Bihar was the first in the country to sign such an MoU with CMC-Vellore.

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Donors ensure lifeblood for 1.2k thalassemia patientsDhruvi, 21, raises awareness about thalassemia, a genetic blood disorder requiring regular blood transfusions. Ahmedabad has over 1,200 registered patients, many leading normal lives. The Indian Red Cross Society's steady blood supply, even during the Covid-19 pandemic, has supported these patients. Dr. Vishwas Amin highlights the city's leading efforts in blood transfusions for thalassemia patients. Lucknow's KGMU to get state-of-the-art bone marrow transplant unitKing George's Medical University in Lucknow will soon have a new Bone Marrow Transplant unit, funded through CSR contributions. Featuring an 8-bed ICU, advanced equipment, and a skilled team, it will offer affordable transplants. Governor Anandiben Patel praised the initiative, while Vice-Chancellor Sonia Nityanand noted its impact on treating conditions like leukaemia and thalassemia.




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